Providing HIV Care: Lessons from the Field for Nurses and Healthcare Practitioners
Beschreibung:
Since beginning her nursing career, Dr. Michelle Croston has been passionate about providing care for people living with HIV. This led her to join the team at North Manchester General Hospital's Infectious Diseases Unit. During this time she gained a diverse range of experiences providing care in an evolving disease area, this has ranged from delivering palliative care to long-term chronic disease management. Her research studies to date have focused on how nurses elicit patients concerns in order to provide person-centered care, how nurses facilitate shared decision-making within HIV care and the effectiveness of person-centred communication training for HIV nurses. She has also led a project involving a national multidisciplinary team, which developed and then evaluated the effectiveness of using a holistic assessment tool within routine HIV care, in order to make consultations patient-centered. In 2011, Dr. Croston joined the National HIV Nurses Association (NHIVA) and, in 2013, was elected as Chair of the Association. During this time, she worked on national initiatives to improve care for people living with HIV and has collaborated with numerous national HIV organisations to raise standards of care. Alongside her national role, she is also an Executive Member of the European HIV Nurse Network (EHNN) and has been involved in developing their educational conferences. This work has led her to be part of the faculty for the International Providers of AIDS Care (IAPAC) electronic educational resource.
Ian Hodgson has been involved in the international health sector for over 20 years. His areas of interest include HIV and TB stigma, sexual and reproductive health rights, cultural determinants of HIV prevention, and advocacy for HIV treatment access. He has worked on a range of projects in Asia, Africa, and Europe, and much of his work involves project monitoring and evaluation using a systematic qualitative approach. Most recently (2020) he has been working on the final evaluation of a large project in Mozambique focusing on maximizing LGBT access to HIV prevention and health services. In 2018 he led a mid-term review of a large HIV advocacy programme focusing on key populations in nine countries in Africa and Asia. Ian is on the Board of Directors of the European AIDS Treatment Group, and a coordinator of the European HIV Nursing Network. He is also an Associate Editor of the journal Ethnicity and Health, PhD supervisor for international health studies, and visiting lecturer at universities in the UK, Ireland, and Belgium.This very first book helps nurses and healthcare practitioners working in the field of HIV care across European to have practical examples of how they could improve/ adapt their services to improve outcomes for people living with HIV. It provides the reader with both knowledge on a variety of different HIV related topic areas and also helps them to translate this learning into a clinical setting.
The main focus of the book is to share best practice in HIV nursing, with the aim of providing a practical guide from multiple countries to improve outcomes for people living with HIV. The book also acts as a resource to healthcare practitioners who are interested in working in many places in the world or carrying out research in HIV care.
1. The changing landscape of HIV care: Humanistic approaches to care delivery
Jane Bruton
The constant re-evaluation of the nurse role in HIV has been and will continue to be crucial in challenging the biomedical model and helping to maintain a person-centred approach. This chapter will define the concept of biomedicine and its limitations and look at the developments in HIV care in their historical, social and economic contexts in the UK with reference to examples of how the role of nursing adapted and grew to respond to the changing landscape of care.
2. How do HIV nurses contribute to HIV care delivery?
Hilary Piercy
This chapter draws on the findings from a recent national study conducted in England to examine where and how HIV specialist nurses can best contribute to the delivery of HIV care. Within the context of an over-arching framework, it details the variability of the role and explains how that variability has evolved in response to a multitude of situational factors. It then goes on to discuss how the demographic profile of the HIV population has broadly polarised into two distinct groups (the majority population who are stable and well with few health problems and a significant minority with complex care needs) and considers the role of the HIV nurse in relation to each of the groups.
3. Leadership in HIV nursing: pathing the future
Jackie Morton
Within this Chapter the history of nurse leadership will be explored and how the nursing contribution to HIV care has impacted on patients outcomes.
4. HIV care in rural areas
Fiona Wallis
This chapter will explore the challenges of providing HIV care in a low sero prevalence rural area. Using a case study approach it will investigate issues faced such as stigma associated with HIV , timely access to services both for testing and treatment and the high rate of late diagnosis. The chapter will explore solutions to the challenges that providing care in the context poses.
5. Innovations in care delivery: the need to think creatively
Catarina Esteves
This chapter focuses on changing personal and social behaviors and practices in order to promote individual and collective health - health education, changing behaviours an the promoting positive health life styles. There is a need for a different approach healthcare differently to allow for the identification of patient needs and improve overall health literacy for people living with HIV.
6. Reaching vulnerable population to provide care
Helena Makinen
This chapter will explore the healthcare needs of immigrants (refugees, asylum seekers), drug users, victims of human trafficking, etc. with a view to exploring how we engage this population in care.
7. Working with young people living with HIV who have cognitive impairment
Tomas Campbell
This chapter will provide a guide for Healthcare practitioners working with young people living with HIV who have cognitive impairment. The reader will explore what are executive functioning problems and how you identify these within a clinical setting so that practitioners can improve outcomes for young people living with HIV.
8. Women and HIV
Christina Antionadi
This chapter will explore the health related quality of life issues for women living with HIV across the lifespan. Evidence based solutions will be provided to the reader to enable services to be reviewed in order meet the needs of women.
Ian Hodgson
Within this chapter access to HIV and preventative services will be explore. The chapter will highlight the barriers to provide an inclusive HIV service , alongside suggesting ways healthcare professionals can be more inclusive within their clinical services.
10. Care considerations for ageing with HIV
Jeffry Kwong
This chapter will provide an overview of the nursing considerations for persons living and aging with HIV. Emphasis will be on the prevalence and significance of chronic comorbidities (CVD, DM, metobolic, neurologic conditions), as well as best practices and recommendations for health promotion and wellness.
11. HIV and Ageing: managing with frailty
Nienke Langebeek
Within the chapter the concept of frailty will be explored within the HIV clinical care setting. The chapter will explore how services can adapt to provide care as people living with HIV are become frail. The nursing and service implications will be explored.
12. From prevention to successful treatment outcomes: Why we need more engagement of nurse in eastern Europe
Anna Zakowicz
This chapter will explore the complexities of engaging a disempowered nursing workforce and the challenges this faces within a resource poor clinical setting.
13. Activism and Community
Damien Kelly
This chapter will explore the historical context of HIV from an activist perspective and provide the reader with an understanding of how to engage community groups in their care.
14. Reducing the power of shame: a compassion focused approach for people living with HIV
Sarah Rutter
Given the complex history of HIV and the heightened levels of trauma experienced within the HIV population (compared to the general population) it is important that we address shame and self-criticism, as such issues often feature within this context. This chapter will introduce the theoretical underpinnings of a compassion focused approach and will the draw on this to help the reader understand how this perspective can be used to help people living with HIV.
15. Who cares for the workforce? : developing mindfulness and resilience
Michelle Croston
As HIV care can be a highly complex area to work in, attention will also be paid to the psychological and emotional impact on healthcare professionals and the importance of self-compassion and self-care within working roles and environments will be considered. This chapter will explore the emotional burden to the workforce providing are for people living with HIV and provide practical solutions to help prevent burnout.