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Nothing about Us, Without Us!: 20 Years of Dementia Advocacy
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Artikel-Nr:
9781849056717
Veröffentl:
2015
Erscheinungsdatum:
21.09.2015
Seiten:
304
Autor:
Christine Bryden
Gewicht:
541 g
Format:
266x222x22 mm
Sprache:
Englisch
Beschreibung:
Christine Bryden had a high-powered job in the Department of the Australian Prime Minister and was a single mother of three children when she was diagnosed with dementia in 1995. Since then, she has gone on to challenge almost every stereotype of people with dementia, speaking at national and international conferences and campaigning for self-advocacy. In 2003, she was the first person with dementia to be elected to the Board of Alzheimer's Disease International (ADI). Christine lives with her husband, Paul, in Brisbane, Australia. She is the author of 'Dancing with Dementia' and 'Who will I be when I die?', both published by JKP.
Insightful and inspiring presentations by the foremost dementia advocate, compiled here for the first time, provide new ways of understanding dementia and better ways to ensure that the voices of people with dementia are heard.
Introduction. 1. Dementia diagnosis - pointing the bone. 2. Diagnosis, drugs and determination. 3. Insider's view of dementia. 4. Dementia diagnosis from an 'insider's' perspective. 5. Dancing with dementia. 6.Nothing about us, without us! 7. A bumpy ride. 8. The support that I need. 9. Stigma and fear. 10. I'm still here! 11. Coming out of the shadow. 12. A decade of change. 13. Lisa and I. 14. Dementia prison. 15. Living life to the full. 16. Mind your language - getting it right! 17. There has to be a better way! 18. Come dance with me! 19. Dementia - an interesting ride! 20. Who was I? Who am I now? Who will I be when I die? 21. Pastoral care of people with dementia.