Beschreibung:
This guide provides everything teachers and parents need to know to support a child or young person with Duchenne Muscular Dystrophy (DMD) at school and home. Medical experts and practitioners working with children with Duchenne in schools give advice on learning and behavioural concerns, physical management and the transition to adulthood.
The prognosis for individuals with Duchenne Muscular Dystrophy (DMD) is improving, with some men with DMD living into their 30s and 40s. More vital than ever, this book helps teachers and parents to support children and young people with DMD with their education and transition into adulthood.
Leading experts on DMD explain Duchenne and its impact in easy-to-understand terms. Going beyond physical management, particular focus is put on learning and behavioural issues, including speech delay and difficulty learning to read, as well as common comorbid conditions, such as ADHD, autism and OCD. Raising aspirations, the book gives guidance on effective support in the classroom and advice on the transition to adulthood, employment and independent living.
1. Introduction: DMD in a New Landscape. Janet Hoskin. 2. Why Do Some Children with DMD Have Learning and Behaviour Difficulties? Kate Maresh and Francesco Muntoni. 3. What are the Learning and Behaviour Risks in DMD? Veronica Hinton and Robert J Fee. 4. The Physical Management of DMD in School, College and Beyond. Lianne Abbott and Victoria Selby. 5. Early Intervention for Reading and Learning. Janet Hoskin. 6. Behavior Solutions in DMD. James Poysky. 7. How to Talk to Children about DMD. David Schonfeld. 8. Having a Road Map for Life - Creating an Education, Health and Care Plan for Duchenne Muscular Dystrophy. Nick Catlin. 9. Taking Charge of Transition. Janet Hoskin and Celine Barry. 10. Getting the Life You Want as an Adult with DMD. Jon Hastie and Mark Chapman.
