Palliative and End of Life Care for Children and Young People

Anne s contribution to our understanding of the needs of young people with cancer has been unparalleled and without her extraordinary insights our services would be that much poorer. From the foreword by Simon Davies , CEO Teenage Cancer Trust This topical and timely text provides valuable insights into the choices and experiences of palliative and end of life care for young people with cancer and other life limiting illnesses. With a focus on palliative care provision across a range of different clinical settings, this comprehensive new resource explores care in the home, the hospice and hospital. It looks at how and where families and young people can access palliative care, and what support is offered to attain their preferred place of death. Bereavement support for families is discussed, as well as a discussion of multidisciplinary work, interagency co-operation and resource issues. This title is essential reading for community children s nurses, specialist palliative care teams, children s hospices, school nurses, social workers and student nurses as well as families. A comprehensive resource on end of palliative are provision for children and young adults with cancer and other life limiting illnesses Timely and topical, tying in with the Department of Health palliative care strategy Better Care: Better Lives Written in an accessible style that does not assume either detailed medical or theoretical knowledge Explores palliative care provision in a range of different clinical settings including the home, hospice, and hospital Provides valuable insights into the experiences of parents, children and young people

"Anne's contribution to our understanding of theneeds of young people with cancer has been unparalleled and withouther extraordinary insights our services would be that muchpoorer."From the foreword by Simon Davies , CEO Teenage CancerTrustThis topical and timely text provides valuable insights into thechoices and experiences of palliative and end of life care foryoung people with cancer and other life limiting illnesses. With afocus on palliative care provision across a range of differentclinical settings, this comprehensive new resource explores care inthe home, the hospice and hospital. It looks at how and wherefamilies and young people can access palliative care, and whatsupport is offered to attain their preferred place of death.Bereavement support for families is discussed, as well as adiscussion of multidisciplinary work, interagency co-operation andresource issues.This title is essential reading for communitychildren's nurses, specialist palliative care teamschildren's hospices, school nurses, social workers andstudent nurses as well as families.* A comprehensive resource on end of palliative are provision forchildren and young adults with cancer and other life limitingillnesses* Timely and topical, tying in with the Department of Healthpalliative care strategy 'Better Care: BetterLives'* Written in an accessible style that does not assume eitherdetailed medical or theoretical knowledge* Explores palliative care provision in a range of differentclinical settings including the home, hospice, and hospital* Provides valuable insights into the experiences of parentschildren and young people

Participants viiiForeword xiiPreface xiiiAcknowledgements xvAbbreviations xvi1 Palliative and End of Life Care for Children and YoungAdults 12 Home-based Palliative and End of Life Care 153 Hospice-based Palliative and End of Life Care 494 Hospital-based Palliative and End of Life Care 875 Preparation for the End of Life, Bereavement and EmotionalSupport 1176 The Implications for Policy and Practice 155Appendix: Methodology 169References 175Index 181