Palliative and End of Life Care for Children and Young People

Dr Anne Grinyer is Senior Lecturer in the Division of Health Research, Faculty of Health and Medicine, Lancaster University. She is Director of the taught Masters programmes in the Division of Health Research. Her teaching covers a range of issues and topics including research methods with a particular emphasis on the ethical challenges of health related research.

"Anne's contribution to our understanding of the needs of young people with cancer has been unparalleled and without her extraordinary insights our services would be that much poorer."
From the foreword by Simon Davies , CEO Teenage Cancer Trust
 

This topical and timely text provides valuable insights into the choices and experiences of palliative and end of life care for young people with cancer and other life limiting illnesses. With a focus on palliative care provision across a range of different clinical settings, this comprehensive new resource explores care in the home, the hospice and hospital. It looks at how and where families and young people can access palliative care, and what support is offered to attain their preferred place of death. Bereavement support for families is discussed, as well as a discussion of multi-disciplinary work, interagency co-operation and resource issues.
 
This will be essential reading for community children's nurses, specialist palliative care teams, children's hospices, school nurses, social workers and student nurses as well as families.
 

* A comprehensive resource on end of palliative are provision for children and young adults with cancer and other life limiting illnesses
 
* Timely and topical, tying in with the latest Department of Health palliative care strategy 'Better Care: Better Lives'
 
* Written in an accessible style that does not assume either detailed medical or theoretical knowledge
 
* Explores palliative care provision in a range of different clinical settings including the home, hospice, and hospital
 
* Provides valuable insights into the experiences of parents, children and young people

Participants viii
 
Foreword xii
 
Preface xiii
 
Acknowledgements xv
 
Abbreviations xvi
 
1 Palliative and End of Life Care for Children and Young Adults 1
 
2 Home-based Palliative and End of Life Care 15
 
3 Hospice-based Palliative and End of Life Care 49
 
4 Hospital-based Palliative and End of Life Care 87
 
5 Preparation for the End of Life, Bereavement and Emotional Support 117
 
6 The Implications for Policy and Practice 155
 
Appendix: Methodology 169
 
References 175
 
Index 181